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Parasympathyblog
Hello & welcome! My name is Jenna, I am a 34 years old and I live in a small Michigan town in Metro Detroit. I am looking to share my journey with hypermobility/Ehlers-Danlos syndrome (EDS), superior mesenteric artery syndrome (SMAS), postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), migraine & cluster headaches and other chronic invisible conditions. I have struggled for years with my health and my goal is to help others in any way possible through my experiences!
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Author Archives: Parasympathyblog
MWG: Jessica’s Miraculous Childbirth Story
Jessica’s High-Risk Pregnancy Tale This is rather long, but I think I am finally ready to share Brody’s birth, his NICU experience and the trauma that I endured. I’ve sat here hesitating; do I share this? Should I share this? … Continue reading
Posted in Monarch Women's Group
Tagged AFI, C-section, caesarean, chronic Lyme, chronic migraine, Cytotec, endo, endometriosis, Gastroparesis, gestational hypertension, Hashimoto's hypothyroid, Hasimotos, hypothyroidism, Lyme disease, migraine syndrome, NRFHR, NST, postpartum depression, postpartum preeclampsia, pulmonary hypertension, shoulder dystocia, traumatic birth
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Ketamine Treatments: A Lifestyle Change
Some things are just too good to be true. Ketamine is not one of those things. Ketamine Treatments: Initial Series My journey with ketamine started in January of 2018. A friend of a friend recommended it for drug-resistant depression, post-traumatic … Continue reading
Posted in Ketamine Treatments, Managing Mental Illness, Research & Treatment Info
Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, depression, digestive tract paralysis, DTP, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, feeding tube, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, Ketamine, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, SMAS, spoonie, Superior Mesenteric Artery Syndrome, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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March 2020: Health Update
I would make a cliché comment about the budding trees or birds chirping like I usually do, but COVID-19 totally hijacked springtime. Even the Easter Bunny is in quarantine. PICC #7 This central line nearly gave me a stress stroke. … Continue reading
Posted in Botox for Migraine, Doctors Visits & Medical Updates, Exacerbation of Symptoms, Ketamine Treatments, Life Events & Updates
Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, Botox for Migraine, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, deafness, depression, digestive tract paralysis, DTP, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Emgality, ENT, Fainting, family, feeding tube, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, Ketamine, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, post traumatic stress, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, PTSD, reality, recovery, Scoliosis, SMAS, spoonie, suicide headaches, Superior Mesenteric Artery Syndrome, syncope, TMJ, troches, tube, tubie, vasovagal syncope, wellness
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February 2020: Health Update
I did a lot this month for not actually doing anything. Brain Power The cluster headaches got so bad I was convinced it was something more serious. When the neurologist confirmed that diagnosis, she ordered Emgality as treatment. The medication … Continue reading
Posted in Botox for Gastroparesis, Botox for Migraine, Doctors Visits & Medical Updates, Exacerbation of Symptoms, Life Events & Updates, Physical Therapy
Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, depression, digestive tract paralysis, DTP, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Emgality, Fainting, family, feeding tube, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, SMAS, spoonie, suicide headaches, Superior Mesenteric Artery Syndrome, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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2 AM
I wrote this piece on November 10th, 2019 but never posted it. I have many “diary” entries like this that will never see the light of day. I thought this one was relatable & blog-worthy. It’s 2AM and I’m drenched … Continue reading
Posted in Life Events & Updates
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Protected: January 2020: Life Update
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Posted in Exacerbation of Symptoms, Life Events & Updates, Managing Mental Illness
Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, depression, digestive tract paralysis, DTP, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, feeding tube, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, SMAS, spoonie, Superior Mesenteric Artery Syndrome, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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Celiac Plexus Block
In October, I consulted with an interventional radiologist, Dr. Metz, about the possibility of MALS (median arcuate ligament syndrome) or NCS (Nutcracker syndrome) in addition to SMAS. My symptoms have worsened since surgery–I have been in and out of the … Continue reading
Posted in Doctors Visits & Medical Updates, Medical Tests, Procedures & Surgeries, Nerve Blocks
Tagged allergies, anemia, anesthesia, anxiety, Arthritis, Autoimmune, awareness, build, celiac plexus block, chronic illness, chronic pain, chronic vomiting, cluster headaches, depression, digestive tract paralysis, DTP, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, feeding tube, fentanyl, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, journey, life, love, Lupus, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, nerve block, neurocardiogenic syncope, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, SMAS, solar plexus, solar plexus block, spoonie, Superior Mesenteric Artery Syndrome, syncope, TMJ, tube, tubie, vasovagal syncope, versed, wellness
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December 2019: Life Update
Willy If you follow me on Instagram, you already know the good news: I am once again the proud owner of a Jeep Wrangler! The Red Rocket (i.e. 2018 Dodge Charger) was the first vehicle I called “mine” since I … Continue reading
Posted in Botox for Migraine, Doctors Visits & Medical Updates, Exacerbation of Symptoms, Life Events & Updates, Managing Mental Illness
Tagged abelism, allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, caregiver, cerebral palsy, Christmas, chronic illness, chronic pain, chronic vomiting, cluster headaches, depression, digestive tract paralysis, DTP, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, feeding tube, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, it's a jeep thing, j-tube, jeep wrangler, jejunostomy, journey, Ketamine, life, love, Lupus, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, new years, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, SMAS, spoonie, Superior Mesenteric Artery Syndrome, syncope, TMJ, tube, tubie, vasovagal syncope, wellness, wrangler
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