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Author Archives: Parasympathyblog
About Parasympathyblog
Hello & welcome! My name is Jenna, I am a 34 years old and I live in a small Michigan town in Metro Detroit. I am looking to share my journey with hypermobility/Ehlers-Danlos syndrome (EDS), superior mesenteric artery syndrome (SMAS), postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), migraine & cluster headaches and other chronic invisible conditions. I have struggled for years with my health and my goal is to help others in any way possible through my experiences!October 2021: Detox Season
I can’t deny the peace I feel in my life at the moment. The house is still dark with that early morning haze; I’ve had four hours sleep as painsomnia precedes me. The boiler is buzzing as heat pumps through … Continue reading →
Posted in Doctors Visits & Medical Updates, Life Events & Updates, Managing Mental Illness
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, Candida albicans, Candida detox, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, Derealization, digestive tract paralysis, DPDR, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Epstein-Barr, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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Summer 2021
I think this is the longest period of time I have gone without blogging. Feels weird, but good to be back. I have been swamped with school. Essays have encompassed my summer, so I am still doing plenty of writing! … Continue reading →
Posted in Life Events & Updates
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, BRCA, BRCA1, BRCA2, build, carcinoma, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, Derealization, digestive tract paralysis, DPDR, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, melanoma, mental health, Mental Illness, migraine, migraine syndrome, naturopath, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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Back to School
The title gives it away so I’ll just cut to the chase: I’m going back to college! Generally, the response I get when I bring this up is “oh, so you’re all better then?” No matter how long I’ve been … Continue reading →
Posted in Life Events & Updates
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, BSW, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, Derealization, digestive tract paralysis, DPDR, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos syndrome, Ehlers-Danlos, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ-Tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, MSW, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, Pre-social work, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, social work, spoonie, Superior Mesenteric Artery Syndrome, support groups, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, Wayne State University, wellness
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Real Talk: Body Memory & Granting Yourself Grace
Have you ever had an instant awakening that revolutionized the way you think and live? Just two weeks ago I would’ve rolled at my eyes at this very question. I used to think enlightenment was reserved for Buddhists who dedicate … Continue reading →
Posted in #RealTalk, Exacerbation of Symptoms, Life Events & Updates
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, Derealization, digestive tract paralysis, DPDR, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos syndrome, Ehlers-Danlos, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ-Tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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Wheelchair Clinic
Learning to walk again is one of my greatest accomplishments. Taking that first step launched the future of my recovery & got me back to feeling like myself. Nothing is guaranteed but if I didn’t put in the work, it … Continue reading →
Posted in Doctors Visits & Medical Updates, Exacerbation of Symptoms, Research & Treatment Info
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, Derealization, digestive tract paralysis, dizziness, DPDR, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos syndrome, Ehlers-Danlos, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, freedom, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ-Tube, GP, health, hypermobility, hypermobility syndrome, immobility, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, KI Mobility, KI Mobility Catalyst, KI Mobility Catalyst 5Vx, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, mobility aid, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness, wheelchair
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Emergency Headache Management
“What’s the worst pain you’ve ever had?” I don’t know why people frequent this question with me, but there’s only ever been one answer: cluster headaches. Last night, however, my pain leveled up with a dual-action hell, maximum migraine + … Continue reading →
Posted in Botox for Migraine, Life Events & Updates
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, depression, digestive tract paralysis, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos syndrome, Ehlers-Danlos, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ-Tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, suicide headaches, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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Real Talk: Anger & Healing
I had a breakthrough today in therapy and I already feel like a different person. I didn’t mean to have a breakthrough. I actually walked into today’s session feeling okay. The last few months I’ve been in a thick depression. … Continue reading →
Posted in Life Events & Updates
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Tagged 2020, allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, digestive tract paralysis, DPDR, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos syndrome, Ehlers-Danlos, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ-Tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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POTS Recovery: Treadmill Routine
Story Time: I was isolated in our home for the first few years of marriage. I only ventured out for appointments and family events, with the occasional dinner date in-between. It was a lonely time that deeply rocked my mental … Continue reading →
Posted in Exacerbation of Symptoms, Life Events & Updates, Understanding Chronic Illness: A Guide
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, depression, digestive tract paralysis, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos syndrome, Ehlers-Danlos, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ-Tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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September 2020: Health Updates
There’s something about the crisp September air that brings me back to nursing school, to being 21 again in the hospital. Autumn lit up the nurses station with hope rather than disdain. Even after all the trauma that took place … Continue reading →
Posted in Doctors Visits & Medical Updates, Exacerbation of Symptoms, Life Events & Updates, Managing Mental Illness
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Tagged allergies, anemia, anxiety, Arthritis, Autoimmune, awareness, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, Depersonalization, depersonalization-derealization disorder, depression, Derealization, digestive tract paralysis, DPDR, DPDR disorder, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, feeding tube, Feminism, Feminist, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, mental health, Mental Illness, migraine, migraine syndrome, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, Sexual assault, Sexual Assault Survivor, SMAS, spoonie, Superior Mesenteric Artery Syndrome, Survivor, syncope, TMJ, trauma, tube, tubie, vasovagal syncope, wellness
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Baby Fever
I hit a colossal milestone last month. At the time it felt like a crisis but it was truly a step in the right direction. After seven years of malnutrition & amenorrhea, my menstrual cycle returned! This is the biggest … Continue reading →
Posted in Doctors Visits & Medical Updates
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Tagged Adoption, allergies, Amenorrhea, anemia, anxiety, Arthritis, Autoimmune, awareness, Baby Fever, build, chronic illness, chronic pain, chronic vomiting, cluster headaches, compression syndromes, depression, digestive tract paralysis, DTP, Dunbar syndrome, dysautonomia, EDS, ehlers danlos, ehlers danlos syndrome, Fainting, family, Family Planning, feeding tube, Fibromyalgia, future, g-tube, Gastroparesis, gastrostomy, gastrostomy tube, GJ tube, GP, health, implanted port, invisible illness, iron deficiency anemia, j-tube, jejunostomy, jejunostomy tube, journey, life, love, Lupus, malnourished, malnutrition, MALS, Mast Cell Activation DIsorder, mast cell activation syndrome, Mast Cell Disease, MCAD, MCAS, Menstruation, mental health, Mental Illness, migraine, migraine syndrome, Miscarriage, Monarch Women's Group, NCS, neurocardiogenic syncope, nutcracker syndrome, Pectus Excavatum, picc, port, positivity, Postural orthostatic tachycardia syndrome, POTS, power port, progress, Psoriasis, reality, recovery, Scoliosis, sick life, SMAS, spoonie, Superior Mesenteric Artery Syndrome, syncope, TMJ, tube, tubie, vasovagal syncope, wellness
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{para}sympathy 